As we determine options for how to get affordable epi to people, we are posting samples of what a doctor might prescribe.  See our first post on this here: The Poor Person's PEpi Pack Rx.

The generic rejection letter basically says it could be any reason under the sun for rejecting the submission for publication on "social media's leading physician voice".  But looking at KevinMD's website, it is pharma advertising driven.  It is owned by MedPageToday -- also pharma advertising driven.  My experience is that no one minds if you fuss and fume at the problems and status quo, as long as you create more traffic for advertising.  But if you actually suggest changing the power structure, getting control into the hands of patients and tangibly reducing advertisers revenues, things change quickly.  I am suggesting just that -- having patients have control of the most life-saving medication there is.  And we are doing something tangible about it.  We are acting to change things practically.  It is, admittedly, revolutionary.  It seems we will need to work through the people's channels of communication to get the word out.  It will be an interesting ride.

​The rejected KevinMD.com submission:


The People’s Epi

We fuss and fume.  We throw out suggestions.  We rage against the machine.

Congress is going to “hold hearings” (roll eyes, sputter, huff).  We create petitions “asking" Mylan to reduce the price of EpiPens, and “asking” Congress to get them to lower the price (which Congress will “talk” about).  Talk, talk, talk.

Reality check:

• It is the job and clear business objective of a Pharma CEO to maximize profits.  Period.  They are not rewarded for caring.  They are not rewarded for or tasked with being “nice”.  They are to use all tools and systems that they can leverage for monetary profit.  And they do.  Period.
  
• Pharma spends hundreds of thousands of dollars annually per member of Congress on lobbying.  They have influenced legislation for the U.S. to be one of the very few countries to allow direct-to-consumer pharmaceutical marketing.  They have positioned themselves to be able to corner the market on vital medications and shake down the government and patients.  Laws are in effect that don’t allow our own government to appropriately negotiate price on behalf of its citizens.  Competition in many forms has been very effectively and systematically extinguished.  They are accountable only to Wall Street.
  
• Innovation is good.  Healthy business is good.  Free markets are good.  We have none of these.
  

I think we have forgotten that we are in America — “the land of the free, and the home of the brave.”  We act and talk like we are helpless.  We publicize and speak against bullying in school hallways, while allowing mass bullying of the most vulnerable among us.  We spend billions in the Middle East to fight oppression and hostage taking of individuals, groups, and countries, while it is rampant and legal in the United States healthcare system.  It is time we woke up and remembered who we are.  We are the people that believe in “government of the people, by the people, and for the people.”  Washington DC is not government.  We are.

It is time to stop talking and fuming, and do something practical and tangible.  It will take planning, time, energy, resources, organization.  We have launched The People’s Epi project — PEpi for short.  We are systematically identifying epinephrine options, working with entities to create short term and long term solutions to the epi crisis, doing whatever is necessary to truly innovate, have healthy sustainable business, and truly free markets that work for patients and citizens of the United States.  Do we need to establish a pharmaceutical company owned by patients with the objective to help people over maximizing profits for Wall Street?  Maybe.  Whatever it takes to get effective affordable epinephrine to those who need it, we need to be prepared to do.

Of all things in healthcare, emergency epinephrine needs to be serving patients.  We invite you to join us in making this happen.  It will take effective, methodical engagement of the public and healthcare.  It will take organization of people and processes, which means dedicated professionals, web presence, social media campaigns, staff, time, and money.  

Solving the epi crisis together can be the nidus for creating healthcare that actually works.  Be the change.  dok.us —> PEpi

Marc Braman, MD, MPH, FACLM, FACPM


PS - To the many in the pharma industry who truly want to help people, we invite you to help us change the system.  We understand that it is a very few top decision-makers with impossible conflicts of interest that are directly responsible.  Ultimately, we are all responsible for cultivating a system that is now so egregiously out of control, resulting in abusing patients for profits.  It will take us all working together to fix it.

A great idea and some more research today....  Seems we could come up with one alternative to an EpiPen at about $60 (single dose).  It would be even better than an EpiPen or similar in some ways.  Stay tuned and help us get this crazy epi situation sorted out! #PEpiproj

So reads the headline: Lifesaving medicines must be affordable

​We couldn't agree more.  Be the change!